Zolgensma

Import duty, GST to be waived for world’s most expensive drug for 2-year-old in Tamil Nadu

Suffering from a genetic disease known as Spinal Muscular Atrophy, the child’s parents had been crowd-sourcing funds for the drug.

Jul 14, 2021, 19:43 PM IST

Good samaritans crowdfund their way to get 3-year-old Hyderabad boy world's most expensive drug

Zolgensma labelled as the "world's most expensive drug" was imported from the US and administered to Ayaansh Gupta to treat Spinal Muscular Atrophy, a rare genetic disease. 

Jun 13, 2021, 14:04 PM IST

To save 5 months Teera Kamat, Modi government gave a discount of 6 crores

5-month-old Teera Kamat, who is battling in a hospital in Mumbai, has a spinal muscular atrophy disease that does not contain a protein-producing gene. To save lives, Zolgensma injection is done for 16 crores, this injection has to be sourced from America, which is taxed 6 crores. The cost of injection after tax is estimated at Rs 22.5 crore. Devendra Fadnavis wrote to the PM for treatment of Tira.

Feb 11, 2021, 14:54 PM IST